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Data Set | Domain | Time Frame | Population | Scope | Sample Size | Contact(s) | |||||||
| Survey Data Sets | ||||||||||||||
| Behavioral Risk Factor Surveillance System (BRFSS) | Health Risk Behaviors | 1984-2005 | Individuals age 18 years and older | National | 12,258 | -------- | ||||||||
| Medicare Current Beneficiary Survey (MCBS) | Health Care Access, Cost, and Use | 1991-present | Medicare Patients | National | 12,000 | -------- | ||||||||
| National Home and Hospice Care Survey (NHHCS) | Health Care Cost, Use, and Quality | 1998, 2000 | Hospice patients | National | 1,425 agencies in 2000 | -------- | ||||||||
| Census of Population and Housing Public Use Microdata Samples | Household Characteristics | 1980, 1990, 2000 | 1% and 5% samples of housing units | National | 683,202 | -------- | ||||||||
| Community Tracking Study | Health Care Access, Cost, Use, and Quality | 1996-1997, 98-99, 2000-01, 2003, 04, 05 | Probability household sample | National | 60,466 households | -------- | ||||||||
| National Survey of America's Families (NSAF) | Household Characteristics | 1997, 1999, 2002 | Housholds in 13 states | National | 34,439 children; 51,586 adults with children; 7,895 childless adults | -------- | ||||||||
| Robert Wood Johnson Foundation Employer Health Insurance Survey | Health Care Access, Cost | 1993-94 | Firms and Health Plans | National | 22,890 firms and health plans | -------- | ||||||||
| Robert Wood Johnson Foundation Family Health Insurance Survey | Health Care Access, Cost | 1993-94 | Civilians in 10 selected states | National | 62,549 | -------- | ||||||||
| National Health Interview Survey (NHIS) | Longitudinal Health Status | 1969-present | Households | National | 36,000-47,000 households, including 92,000-125,000 individuals | Perez-Stable, Phillips, Liang | ||||||||
| The Third National Health and Nutrition Examination Survey (NHANES III) | Health Status | 1988-1994 | Households | National | 40,000 individuals | -------- | ||||||||
| National School-Based Youth Risk Behavior Survey (YRBS) | Health Risk Behaviors | 1990, 1991, 1993, 1995, 1997, 1999, 2001, 2003 | High school students | National | 10,000-17,000 each year | -------- | ||||||||
| National Longitudinal Survey of Youth (NLSY79 and NLSY97) | Youth Economic and Social Behaviors | Youth 1979-1994, 1996, 1998, Children 1986-1998, Young Adults 1994-1998 | youth, children, young adults | National | Ongoing: 12,686 men and women, 4,924 children, 2,143 young adults as of 1998 | -------- | ||||||||
| National Maternal and Infant Health Survey (NMIHS) | Maternal and Child Health | 1988 and follow-up in 1991 | Birth certificates | National | 9,935 birth certificates; 5,332 infant death certificates; 3,309 fetal death certificates | -------- | ||||||||
| National Ambulatory Medical Care Survey (NAMCS) | Health Care Utilization | 1973-1981, 1985, annually since 1989 | Physicians | National | 3,000 physicians | -------- | ||||||||
| National Hospital Ambulatory Medical Care Survey (NHAMCS) | Health Care Utilization | 1973-2004 | Emergency and Outpatient Department visits | National | 50 ED visits and 150 outpatient visits from 524 hospitals | -------- | ||||||||
| National Hospital Discharge Survey (NHDS) | Hospital Inpatient Data | 1965-present | Hospital discharge records | National | 270,000 records from 500 hospitals | -------- | ||||||||
| Medical Expenditure Panel Survey (MEPS) | Health Care Utilization and Household Characteristics | 1996-present | Households | National | 33,000 in 1997 | Kim, Phillips, Liang | ||||||||
| Health and Retirement Survey (HRS) | Aging and Health Status | 1992-2004 | Household residents | National | 21,000 respondents in 7,100 households | -------- | ||||||||
| National Nursing Home Survey (NNHS) | Health Care Utilization and Health Status | 1995, 1997, 1999 | Nursing Homes | National | 14,000 residents of 1,423 nursing homes | -------- | ||||||||
| AHA Annual Survey Database | Health Care Cost and Utilization | 1999,2000 | Hospitals | National | 6044 hospitals | -------- | ||||||||
| Census of Population and Housing, 2000 | Household Characteristics | 2000 | Households | National | Varies geographically | -------- | ||||||||
| California Health Interview Survey | Health Risk Behaviors and Health Status | 2001,2003 | Households | California | 2001-55,000 households 2003-42,000 households | -------- | ||||||||
| National Survey of Children's Health | Children's Health | 2003-2004 | Children aged 0-17 | National | 102,353 children | Newacheck | ||||||||
| National Survey of Children with Special Health Care Needs | Children's Health | 2000-2002 | Children aged 0-17 | National | 750 CSHCN, 2,700 non-CSHCN per state | Newacheck | ||||||||
| National Survey of Drug Abuse and Health (NSDUH) | Addiction and Health Risk Behaviors | Annually 1996-2004 | Youth, Young Adults | National | 67,760 interviews | Schmidt | ||||||||
| National Epidemiological Survey of Alcoholism and Related Conditions (NESARC) | Addiction and Health Risk Behaviors | 2001-2002 | Household residents 18 and older | National | 43,093 | Schmidt | ||||||||
| National Longitudinal Alcohol Epidemiology Survey (NLAES) | Addiction and Health Risk Behaviors | 1991-1992 | Household residents 18 and older | National | ??? | Schmidt | ||||||||
| Utilization and Administrative Data Sets | ||||||||||||||
| San Francisco Department of Public Health CHN data (THREDS) | Health Care Utilization, Outcomes, and Health Status | 1996-present | Community Health Network (CHN) patients | San Francisco | ??? | Bindman | ||||||||
| Health Care Cost and Utilization Project: Nationwide Inpatient Sample (HCUP-NIS) | Health Care Costs and Utilization | Annually 1988-2003 | Hospital Discharges | 37 States | 8 million hospital stays | Bindman | ||||||||
| Health Care Cost and Utilization Project: State Inpatient Databases (HCUP-SID) | Health Care Costs and Utilization | Annually 1995-2002 | Hospital Discharges | 36 States | ---- | -------- | ||||||||
| Health Care Cost and Utilization Project: Kid's Inpatient Databases (HCUP-KID) | Health Care Costs and Utilization | 1997, 2000, 2003 | Hospital Discharges for individuals under 20 years of age | 36 States | 3,438 hospitals in 2003 | -------- | ||||||||
| California (OSHPD) Inpatient Discharge Data | Health Care Costs and Utilization | Annually 1999-2004 | Hospital Discharges | California | 400+ hospitals | Bindman | ||||||||
| Study of Osteoporatic Fractures | Health Status | 1986-present | Clinical visits every two years | California | 10,366 women | Cummings | ||||||||
| Osteoarthritis Initiative | Health Status | 2006 | Clinical observation study | National | 4,700 | Nevitt | ||||||||
| Population Level Data | ||||||||||||||
| Area Resource File | Geographic data | ----- | National | Geographic Regions | 6,000 variables per county | -------- | ||||||||
| Current Population Survey | Labor Force Characteristics | 1950-present | Monthly Household Survey | National | 50,000 Households | -------- | ||||||||
| Surveillance Epidemiology and End Results (SEER) Public-Use Data | Cancer Data | 1973-2003 | Population-based Cancer Registries | National | Covers 26% of US population | -------- | ||||||||
| California Cancer Registry | Cancer Data | 1985-present | Population-based Cancer Registry | California | 1.3 million cases | -------- | ||||||||